Machine learning and unwavering support helped Joseph Coates overcome POEMS syndrome. Discover how computational medicine is ...

“Rare disease can be very isolating at times. So, I think if you have good support around you, it makes all the difference in the world,” Dr. Johnson told Channel 9. “We love him so ...

Rare disease patients are known to have high rates of depression, as when you are one of very few people with a disease, it's hard to find someone who can relate to you. The idea of a disease ...

Coming Together for a Cure partnered with Cariloop to give families free access to its caregiver support platform.

a New Jersey mother credits an "amazing" new drug for stopping her disease in its tracks. Raziel Green, 52, an active runner and mother of two, was diagnosed with a rare form of ALS in 2017.

Imagine waiting years to find out what is wrong with your child. For families dealing with rare disease, this is a harsh reality, and the journey is often long and filled with uncertainty.

(PRNewsfoto/Avidity Biosciences, Inc.) "Rare Disease Day represents an important opportunity for all of us, including people living with rare diseases, their friends, family and caregivers ...

(WRIC) — Donna Reynolds of Richmond knows all too well the devastating toll that a rare disease can take ... Kellan’s Legacy of Love, which provides toys and comfort to children who are ...

ALSO HAPPENING NOW, TODAY IS RARE DISEASE DAY, 300 MILLION PEOPLE WORLDWIDE ARE LIVING WITH A RARE DISEASE. AND THIS DAY IS ALL ABOUT RAISING AWARENESS FOR THEM, THEIR FAMILIES AND CAREGIVERS.

a New Jersey mother credits an “amazing” new drug for stopping her disease in its tracks. Raziel Green, 52, an active runner and mother of two, was diagnosed with a rare form of ALS in 2017.