Ensuring every newborn has access to life-saving screening and treatment is both a moral and economic imperative.' ...
Prince Frederik of Luxembourg, the youngest son of Prince Robert of Luxembourg and Princess Julie of Nassau, has died after a ...
Prince Frederik of Luxembourg, who died at 22, spoke about the rare genetic disorder he navigated in a video released by The ...
A rare disease has taken a piece of Aubrey's childhood away from her: the ability to ride a bike. But, a public vote could ...
Prince Frederik, the son of Europe's Prince Robert of Luxembourg, has died from a rare genetic disease, his family announced.
Ms. Arakawa, the wife of the actor Gene Hackman, died from the effects of a disease often caused by contact with droppings ...
Cherokee Nation Principal Chief Chuck Hoskin Jr signed an executive order in February 2024 establishing a Rare Disease Task ...
Our goals are to expand access to genomic testing and develop cutting-edge genomic testing to help more families get answers ...
Luxembourg's Royal Family has announced the death of Prince Frederick at 22 years old.
Rare POLG mitochondrial disease explained after Prince Frederik of Luxembourg died aged 22 following his diagnosis when he ...
Most individuals diagnosed with a rare disease won’t live to become teenagers or adults. I knew what I had to do.